A 13-year-old girl in India is slowly turning into stone due to a rare medical condition known as Fibrodysplasia Ossificans Progressiva (FOP). This condition causes the body’s soft connective tissues, such as muscles, tendons, and ligaments to be replaced by bone, eventually leading to a person becoming a living statue. The girl, Divyanshi, lives in the Indian state of Rajasthan and was diagnosed with the condition at the age of two. Since then, she has been confined to a wheelchair and her movement has become increasingly restricted. Her parents have had to watch helplessly as their daughter’s condition has deteriorated over time.
Divyanshi’s case is particularly severe. Her spine has been fused into a single vertebra and she is unable to move her arms or legs. She also has bone growths in her neck and face, which have affected her ability to speak. The bone growths are so heavy that Divyanshi needs help lifting her head. While there is no cure for FOP, there are treatments that can help slow the progression of the condition. However, due to the rarity of the condition and the lack of awareness about it, many doctors are unaware of the condition and how to treat it.
Divyanshi’s parents have been struggling to get her access to the specialized treatments she needs. They have set up a fundraising page to help pay for her medical care and have been reaching out to medical professionals for help. Divyanshi’s story highlights the need for greater awareness of rare conditions like FOP and the importance of providing access to specialized treatments for those suffering from them. With the right kind of help, people like Divyanshi can live a full life despite their condition.
